tag:blogger.com,1999:blog-37281439540164354412011-11-27T18:28:33.003-05:00The documentation of life of a mom with a disabled child. Topics that I will talk about and deal with will be regarding diagnosis such as Epilepsy, Cerebral Palsy, Hypoxic Ischemic Encephalopathy, Autism Spectrum Disorder, Sensory Processing Disorder, Visual Processing Disorder, Auditory Processing Disorder, Short term memory problems in young children, ADHD. This will be about what it is like to be a mom or caregiver to someone with special needs and my experiences with Life.Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.comBlogger141100tag:blogger.com,1999:blog-3728143954016435441.post-4887267685329142442008-05-20T14:38:00.005-04:002008-05-20T15:17:02.405-04:00

I am sitting here in wonderment about an accomplishment my family did together. We rode and rode and rode a bike, all of us just this past Saturday. When I say rode, I mean 20 miles rode. I am not an avid biker, in fact one really couldn't call me even a social, intermittent, periodic or sporadic bike rider either. I don't think that I have ridden collectively 20 miles on a bicycle in my entire

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-3423508607498406552008-05-15T23:25:00.000-04:002008-05-20T15:18:24.365-04:00

For over 3 years, I struggled (and still struggle somewhat) with the question of was this part of his disability (not being able physiologically to moderate his own emotions and behaviors, or was it manipulative behaviors?) Even the specialists can't give me a definitive answer and stick to it. One visit, the neurologist would tell me that he was having partial complex kind of spiking activity

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-70621654784558412442008-05-15T23:14:00.000-04:002008-05-15T23:15:33.658-04:00

I had a traumatic birthing process with my son. As part of my"recovery" my OB gave strict instructions to get back to business as soon as possible to help with healing. Armed with protection, we complied. Well, apparently the only fire sure 100% protection is abstinence. 357 days later,baby #2 was born. The first 3 months I didn't really know I was pregnant,and the next month I was in denial. The

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-89841408010559163562008-05-15T23:07:00.000-04:002008-05-15T23:13:41.815-04:00

How do we know if a bad behavior is just a bad behavior and not something with a medical cause or a result of their disability?We have mostly figured out what his triggers are for tantrums. The ones out of nowhere dropping to ground for lengthy periods of ime with extreme exhaustion afterwards are probably seizures or just a complete shut down from sensory overload and the subsequent inability to

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-32945220186725772072008-05-15T22:46:00.000-04:002008-05-15T22:56:06.972-04:00

On this journey we are all taking wth trying to raise a child with special needs, we will encounter so many obstacles. Tests, trials, call it what you may, but it is so hard. Potty training a typically developing child is difficult. Training a special needs child can seem like it is going to break your spirit. At least it has tried to now for almost 3 years. My son turned 7 this past April. He

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-19027332127246381892008-05-15T22:43:00.000-04:002008-05-15T22:46:39.975-04:00

I have read SO many posts on the subject of "other people's reactions" to our kids and their exceptionalities. I think that MOST people are inherently good, and aren't purposely setting out to anger us when they say" but he looks so normal" in response to learning our kids have special needs. That is a compliment. Take it as such. When someone says that to me I want to scream Hallelujah from the

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-63002176975960897832008-05-15T22:36:00.000-04:002008-05-15T22:41:46.170-04:00

The parent that has a child diagnosed with CPor Encephalopathy that does not ever have issues with some sort of Learning disability is Rare and Lucky. My son is only 6 and I feel as tho I could sit for any state licensing board for Exceptional Student Ed and Pass with flying colors without having taken one class. One of many things we deal with include visual processing difficulties. My son has

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-91123957598893068062008-05-15T22:30:00.000-04:002008-05-15T22:34:50.494-04:00

http://www.childrensdisabilities.info/cerebral_palsy/mildcp.html#MilnerIt is a nice article regarding both the trials and tribulations of children with mild CP. In the name of being completely honest, I have to admit thinking at the end of the article "If only I were that lucky to have such problems!" While my son is able to walk, (walk fast in an attempt to run)he can use a fork (prefers to use

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-19940071942412786532008-05-15T22:21:00.000-04:002008-05-15T22:28:30.505-04:00

I have been meaning to write a blog for awhile now, maybe a year. Ican't remember. I can hardly remember what I had for breakfast. Sometimes I try to start one, sometimes I feel as tho I could share myexperiences and maybe help someone out there feel as tho the world isn't falling in on them, that there is someone else out there that gets it. One of the most "engaging" topics in the news has been

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-76629292808221315882008-05-15T22:09:00.000-04:002008-05-15T22:18:37.023-04:00

Music can be so prolificThis is a lengthy post, .....It seems as if time is so fluid, at least these last years after my son was born. I can hardly use that as the all excuse explanation as he is now 7. But, I do remember either this past New Years or last New Years having a cryfest. After my son was born, we knew there were going to be long term difficulties and we sat down and discussed our

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-18348063103950525052008-05-15T21:58:00.001-04:002008-05-15T22:08:12.622-04:00

The burden we carry, the parents of children with special needs thru the eyes of wisdom.After my son was born, maybe a few months, my grandma made the comment of "How sorry she was that I was going to have to shoulder this burden and go thru this life, and she knew she didn't have the strength it was going to take for me to get thru it." I could tell she was really saddened by it. At the time, I

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-22069049722505882082008-05-15T21:30:00.000-04:002008-05-15T21:55:51.951-04:00

It will take just 37 seconds to read this and change your thinking. Two men, both seriously ill, occupied the same hospital room.One man was allowed to sit up in his bed for an hour each afternoon to help drain the fluid from his lungs.His bed was next to the room's only window. The other man had to spend all his time flat on his back.The men talked for hours on end.They spoke of their wives and

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-33319692795524193872008-05-10T12:02:00.000-04:002008-05-15T21:43:57.302-04:00

There are so many points this Erma Bombeck has nailed, at least where itconcerns me and my experience thru this whole thing. It is funny because the only father figure I have ever known is my step dadand he was PhD level trained minister. Super smart, could always accuratelyquote any scripture in the bible without reference with uncanny accuracy. Needless to say, religion was a major influence in

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0tag:blogger.com,1999:blog-3728143954016435441.post-7337571523714911362008-05-10T12:00:00.001-04:002008-05-10T12:00:55.198-04:00

The Special Motherby Erma BombeckMost women become mothers by accident, some by choice,a few by social pressure and a couple by habit.This year nearly 100,000 women will become mothers of handicapped children.Did you ever wonder how these mothers are chosen? Somehow I visualize God hovering over EarthSelecting his instruments for propagation with great care and deliberation.As he observes, he

Kellyhttp://www.blogger.com/profile/07130350287229275287noreply@blogger.com0